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《HOPE English 希平方》服務條款關於個人資料收集與使用之規定

隱私權政策
上次更新日期:2014-12-30

希平方 為一英文學習平台,我們每天固定上傳優質且豐富的影片內容,讓您不但能以有趣的方式學習英文,還能增加內涵,豐富知識。我們非常注重您的隱私,以下說明為當您使用我們平台時,我們如何收集、使用、揭露、轉移及儲存你的資料。請您花一些時間熟讀我們的隱私權做法,我們歡迎您的任何疑問或意見,提供我們將產品、服務、內容、廣告做得更好。

本政策涵蓋的內容包括:希平方 如何處理蒐集或收到的個人資料。
本隱私權保護政策只適用於: 希平方 平台,不適用於非 希平方 平台所有或控制的公司,也不適用於非 希平方 僱用或管理之人。

個人資料的收集與使用
當您註冊 希平方 平台時,我們會詢問您姓名、電子郵件、出生日期、職位、行業及個人興趣等資料。在您註冊完 希平方 帳號並登入我們的服務後,我們就能辨認您的身分,讓您使用更完整的服務,或參加相關宣傳、優惠及贈獎活動。希平方 也可能從商業夥伴或其他公司處取得您的個人資料,並將這些資料與 希平方 所擁有的您的個人資料相結合。

我們所收集的個人資料, 將用於通知您有關 希平方 最新產品公告、軟體更新,以及即將發生的事件,也可用以協助改進我們的服務。

我們也可能使用個人資料為內部用途。例如:稽核、資料分析、研究等,以改進 希平方公司 產品、服務及客戶溝通。

瀏覽資料的收集與使用
希平方 自動接收並記錄您電腦和瀏覽器上的資料,包括 IP 位址、希平方 cookie 中的資料、軟體和硬體屬性以及您瀏覽的網頁紀錄。

隱私權政策修訂
我們會不定時修正與變更《隱私權政策》,不會在未經您明確同意的情況下,縮減本《隱私權政策》賦予您的權利。隱私權政策變更時一律會在本頁發佈;如果屬於重大變更,我們會提供更明顯的通知 (包括某些服務會以電子郵件通知隱私權政策的變更)。我們還會將本《隱私權政策》的舊版加以封存,方便您回顧。

服務條款
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上次更新日期:2013-09-09

歡迎您加入看 ”希平方”
感謝您使用我們的產品和服務(以下簡稱「本服務」),本服務是由 希平方 所提供。
本服務條款訂立的目的,是為了保護會員以及所有使用者(以下稱會員)的權益,並構成會員與本服務提供者之間的契約,在使用者完成註冊手續前,應詳細閱讀本服務條款之全部條文,一旦您按下「註冊」按鈕,即表示您已知悉、並完全同意本服務條款的所有約定。如您是法律上之無行為能力人或限制行為能力人(如未滿二十歲之未成年人),則您在加入會員前,請將本服務條款交由您的法定代理人(如父母、輔助人或監護人)閱讀,並得到其同意,您才可註冊及使用 希平方 所提供之會員服務。當您開始使用 希平方 所提供之會員服務時,則表示您的法定代理人(如父母、輔助人或監護人)已經閱讀、了解並同意本服務條款。 我們可能會修改本條款或適用於本服務之任何額外條款,以(例如)反映法律之變更或本服務之變動。您應定期查閱本條款內容。這些條款如有修訂,我們會在本網頁發佈通知。變更不會回溯適用,並將於公布變更起十四天或更長時間後方始生效。不過,針對本服務新功能的變更,或基於法律理由而為之變更,將立即生效。如果您不同意本服務之修訂條款,則請停止使用該本服務。

第三人網站的連結 本服務或協力廠商可能會提供連結至其他網站或網路資源的連結。您可能會因此連結至其他業者經營的網站,但不表示希平方與該等業者有任何關係。其他業者經營的網站均由各該業者自行負責,不屬希平方控制及負責範圍之內。

兒童及青少年之保護 兒童及青少年上網已經成為無可避免之趨勢,使用網際網路獲取知識更可以培養子女的成熟度與競爭能力。然而網路上的確存有不適宜兒童及青少年接受的訊息,例如色情與暴力的訊息,兒童及青少年有可能因此受到心靈與肉體上的傷害。因此,為確保兒童及青少年使用網路的安全,並避免隱私權受到侵犯,家長(或監護人)應先檢閱各該網站是否有保護個人資料的「隱私權政策」,再決定是否同意提出相關的個人資料;並應持續叮嚀兒童及青少年不可洩漏自己或家人的任何資料(包括姓名、地址、電話、電子郵件信箱、照片、信用卡號等)給任何人。

為了維護 希平方 網站安全,我們需要您的協助:

您承諾絕不為任何非法目的或以任何非法方式使用本服務,並承諾遵守中華民國相關法規及一切使用網際網路之國際慣例。您若係中華民國以外之使用者,並同意遵守所屬國家或地域之法令。您同意並保證不得利用本服務從事侵害他人權益或違法之行為,包括但不限於:
A. 侵害他人名譽、隱私權、營業秘密、商標權、著作權、專利權、其他智慧財產權及其他權利;
B. 違反依法律或契約所應負之保密義務;
C. 冒用他人名義使用本服務;
D. 上載、張貼、傳輸或散佈任何含有電腦病毒或任何對電腦軟、硬體產生中斷、破壞或限制功能之程式碼之資料;
E. 干擾或中斷本服務或伺服器或連結本服務之網路,或不遵守連結至本服務之相關需求、程序、政策或規則等,包括但不限於:使用任何設備、軟體或刻意規避看 希平方 - 看 YouTube 學英文 之排除自動搜尋之標頭 (robot exclusion headers);

服務中斷或暫停
本公司將以合理之方式及技術,維護會員服務之正常運作,但有時仍會有無法預期的因素導致服務中斷或故障等現象,可能將造成您使用上的不便、資料喪失、錯誤、遭人篡改或其他經濟上損失等情形。建議您於使用本服務時宜自行採取防護措施。 希平方 對於您因使用(或無法使用)本服務而造成的損害,除故意或重大過失外,不負任何賠償責任。

版權宣告
上次更新日期:2013-09-16

希平方 內所有資料之著作權、所有權與智慧財產權,包括翻譯內容、程式與軟體均為 希平方 所有,須經希平方同意合法才得以使用。
希平方歡迎你分享網站連結、單字、片語、佳句,使用時須標明出處,並遵守下列原則:

  • 禁止用於獲取個人或團體利益,或從事未經 希平方 事前授權的商業行為
  • 禁止用於政黨或政治宣傳,或暗示有支持某位候選人
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  • 禁止公佈或傳送任何誹謗、侮辱、具威脅性、攻擊性、不雅、猥褻、不實、色情、暴力、違反公共秩序或善良風俗或其他不法之文字、圖片或任何形式的檔案
  • 禁止侵害或毀損希平方或他人名譽、隱私權、營業秘密、商標權、著作權、專利權、其他智慧財產權及其他權利、違反法律或契約所應付支保密義務
  • 嚴禁謊稱希平方辦公室、職員、代理人或發言人的言論背書,或作為募款的用途

網站連結
歡迎您分享 希平方 網站連結,與您的朋友一起學習英文。

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希平方 x ICRT

「Kathy Hull:末期病童之家的故事」- Stories from a Home for Terminally Ill Children


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I want to introduce you to some very wise kids that I've known, but first I want to introduce you to a camel. This is Cassie, a therapy camel visiting one of our young patients in her room, which is pretty magical. A friend of mine raises camels at his ranch in the Santa Cruz Mountains. He has about eight of them, and he started 30 years ago because he thought horses were too mundane. John is an out-of-the-box thinker, which explains why the two of us have been such good friends all of our lives. Over the years, I've convinced him to shuttle those sweet furry beasts up to hang out with our sick kids from time to time. Talking to John, I was surprised to learn that camels have an average life expectancy of 40 to 50 years. The life expectancy of many of the children with whom I work is less than a year.

This is a picture of the George Mark Children's House, the first pediatric palliative respite care center to open in the United States. I founded it in 2004, after years of working as a psychologist on pediatric intensive care units, frustrated with the undignified deaths that so many children experienced and their families had to endure. As I sat with families whose children were at the end of their lives, I was acutely aware of our surroundings. While the elevated train rumbled overhead on its track, quite literally the room reverberated with each passing train car. The lights on the ward were fluorescent and too bright. Monitors beeped, as did the elevator, noisily announcing its arrival. These families were experiencing some of the most excruciating moments of their lives, and I so wanted them to have a more peaceful place in which to say a last goodbye to their young daughters and sons. Surely, I thought, there must be a better spot than a hospital intensive care unit for children at the end of their lives.

Our children's house is calm and nurturing. It's a place where families can stay together to enjoy quality time with their children, many of whom are there for respite stays, some with repeated visits over a span of many years. We call those kids our frequent flyers. Rather than the bright, noisy quarters of the hospital, their rooms are calm and comfortable, with actual living spaces for the families, a sanctuary of gardens and a wonderful outdoor playground with special structures for children with physical limitations.

This sweet baby Lars came to us directly from a hospital intensive care unit. Imagine hearing the heartbreaking news that none of us would ever want to hear. His parents had been told that Lars had a brain anomaly that would keep him from ever swallowing, walking, talking or developing mentally. Recognizing what little chance he had for survival, his parents chose to focus on the quality of time that they could spend together. They moved into one of our family apartments and treasured each day that they had, which were far too few. Lars's life was brief, to be sure, mere weeks, but it was calm and comfortable. He went on hikes with his parents. The time that he spent in the pool with our aquatic therapist lessened the seizures he was experiencing and helped him to sleep at night. His family had a peaceful place in which to both celebrate his life and mourn his death.

It has been five years since Lars was with us, and in that time, his family has welcomed a daughter and another son. They are such a powerful testament to the positive outcome that specialized children's hospice care can create. Their baby's physical discomfort was well managed, giving all of them the gift of time to be together in a beautiful place.

I'm going to talk to you now about the elephant rather than the camel in the room. Very few people want to talk about death, and even fewer about children's death. Loss of a child, especially for those of us who have our own children, is frightening, more than frightening, paralyzing, debilitating, impossible. But what I've learned is this: children don't stop dying just because we the adults can't comprehend the injustice of losing them. And what's more, if we can be brave enough to face the possibility of death, even among the most innocent, we gain an unparalleled kind of wisdom.

Take Crystal, for example. She was one of the first children to come for care after we opened our doors. She was nine when she arrived, and her neurologist expected that she might live another two weeks. She had an inoperable brain tumor, and her decline had really accelerated in the week before she came to us. After settling into her room, dressed entirely in pink and lavender, surrounded by the Hello Kitty accessories that she loved, she spent the next several days winning over the hearts of every staff member. Bit by bit, her condition stabilized, and then to our astonishment, she actually improved. There were a variety of factors that contributed to Crystal's improvement which we later came to call the "George Mark bump," a lovely, not uncommon phenomenon where children outlive the prognoses of their illnesses if they're outside of the hospital. The calmer atmosphere of her surroundings, tasty meals that were fixed often to accommodate her requests, the resident pets, the therapy dog and rabbit spent lots of cozy time with Crystal.

After she had been with us for about a week, she called her grandmother, and she said, "Gee, I'm staying in a great big house, and there's room for you to come, too. And guess what? You don't have to bring any quarters because the washer and dryer are free."

Crystal's grandmother soon arrived from out of town, and they spent the remaining four months of Crystal's life enjoying very special days together. Some days were special because Crystal was outside in her wheelchair sitting by the fountain. For a little girl who had spent most of the year earlier in a hospital bed, being outside counting hummingbirds made for an amazing time with her grandma, and lots of laughter. Other days were special because of the activities that our child life specialist created for her. Crystal strung beads and made jewelry for everybody in the house. She painted a pumpkin to help decorate for Halloween. She spent many excited days planning her tenth birthday, which of course none of us thought she would ever see. All of us wore pink boas for the occasion, and Crystal, as you can see, queen for a day, wore a sparkly tiara.

One hot morning, I arrived at work and Crystal and her partner in crime, Charlie, greeted me. With some help, they had set up a lemonade and cookie stand outside the front door, a very strategic location. I asked Crystal the price of the cookie that I had selected, and she said, "Three dollars."

I said that seemed a bit high for one cookie.

It was small. "I know," she acknowledged with a grin, "but I'm worth it."

And therein lie the words of wisdom of a young girl whose brief life forever impacted mine. Crystal was worth it, and shouldn't every child whose life is shortened by a horrific illness be worth it? Together, all of us today can offer that same specialized care that Crystal received by recognizing that children's respite and hospice care is a critical component missing from our healthcare landscape. It's also interesting to note that we are able to provide this care at about one third of the cost of a hospital intensive care unit, and our families don't see a bill. We are ever grateful to the supporters who believe in this important work that we're doing.

The truth is that my colleagues and I and the parents and other family members who get to experience this special wisdom are in a unique position. There are only two freestanding pediatric hospices in the United States, although I'm happy to report that based on our model, there are 18 others under various stages of development.

Still, most of the children who die in the United States every year die in hospital rooms, surrounded by beeping machines and anxious, exhausted adults who have no other option but to say goodbye under those harsh, institutional lights and among virtual strangers. For comparison's sake, the United Kingdom, which is a country with about one fifth the population of the United States, and about half the size of the state of California, has 54 hospice and respite centers. Why is that? I've asked myself that question obviously many times. My best guess is that Americans, with our positive can-do attitude hold the expectation that our medical care system will fix it, even though it may be a childhood illness for which there is no cure. We go to extraordinary measures to keep children alive when in fact the greatest kindness that we might give them would be a peaceful, pain-free end of life. The transition from cure to care remains a challenging one for many hospital physicians whose training has really been about saving lives, not about gently guiding the patient to the end of life. The dad of a sweet baby for whom we cared at the end of her life certainly captured this dichotomy when he reflected that there are a lot of people to help you bring an infant into the world but very few to help you usher a baby out.

So what is the magic ingredient at George Mark? The complex medical diagnoses that bring our young patients to us mean that their lives have often been restricted, some to a hospital bed for long periods of time, others to wheelchairs, still others to intensive courses of chemotherapy or rehab. We make a practice of ignoring those limitations. Our default answer is "yes" and our default question is, "Why not?"That's why we took a young boy who wasn't going to live for another baseball season to Game 5 of the World Series. That's why we have a talent show put on by the staff and kids for family and friends. Who wouldn't be enchanted by a young boy playing a piano piece with his feet, because his arms are atrophied? That's why we have a prom every year. It's pretty magical. We started the prom after hearing a dad lament that he would never pin a boutonniere on his son's tuxedo lapel. The weeks before the dance, the house is in a flurry, and I don't know who's more excited, the staff or the kids.

The night of the event involves rides in vintage cars, a walk on a red carpet into the great room, a terrific DJ and a photographer at the ready to capture pictures of these attendees and their families. At the end of the evening this year, one of our young, delightful teenaged girls, Caitlin, said to her mom, "That was the best night of my whole life." And that's just the point, to capture the best days and nights, to abolish limitations, to have your default answer be "yes" and your default question be, "Why not?"

Ultimately life is too short, whether we live to be 85 years or just eight. Trust me. Better yet, trust Sam. It's not by pretending that death doesn't exist that we keep the people, especially the little people that we love, safe. In the end, we can't control how long any of us lives. What we can control is how we spend our days, the spaces we create, the meaning and joy that we make. We cannot change the outcome, but we can change the journey. Isn't it time to recognize that children deserve nothing less than our most uncompromising bravery and our wildest imagination.

Thank you.

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    單句重覆、上一句、下一句:顧名思義,以句子為單位重覆播放,單句重覆鍵顯示橘色時為重覆播放狀態;顯示灰色時為正常播放狀態。按上一句鍵、下一句鍵時就會自動重覆播放該句。
    收錄佳句:點擊可增減想收藏的句子。

    中、英文字幕開關:中、英文字幕按鍵為綠色為開啟,灰色為關閉。鼓勵大家搞懂每一句的內容以後,關上字幕聽聽看,會發現自己好像在聽中文說故事一樣,會很有成就感喔!
    收錄單字:用滑鼠框選英文單字可以收藏不會的單字。
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    或是您有收錄很優秀的句子時,也可以分享佳句給大家,一同看佳句學英文!